Me Today?

Today I am a single mother of two amazing little boys: one miracle child with a life limiting disorder called Duchenne Muscular Dystrophy who also has Autism and another precocious little gift who is a sibling of a child with a disability and has unique needs of his own.

I am a woman who is sober and works diligently to maintain a spiritual connection on a daily basis in spite of my inclination to live otherwise. While I do my best to live in gratitude for what I have, I am also someone who can’t help wanting it all… peace of mind, joy, laughter, integrity, beautiful relationships and an opportunity to give back to the world something meaningful every day.

I am an advocate who has learned how to collaborate within systems, navigate laws and find the hardest reaching resources available…... at first for my own son, and later to help make others similar journeys a little less painful, complicated or lonely.

I am a person who is learning how to live one day at a time. I have to work to be accountable and honest with myself and others in all my affairs. I try my best to live in the solution, not the problem and am interested in searching out similarities while appreciating the differences in all who I meet.

I am a person with great hope and faith in my heart that tends to believe that disguised in all this rhetoric lays an incredible, delicious journey that is available to us all in spite of….. or maybe even because of, the challenges we face.

I pray often that in the end, my perseverance for clarity and love will outweigh my constant fallibility. And in the effort to make sense, or use of my unique challenges, I hope that while I pursue the resting place of divinity, I have the courage to share the treasure map with others……. much in the way those who came before, so graciously shared with me.