How I feel after the news

I understand now. I get it. For the last year, I struggled to understand the reason for all my personal pain. But today it’s all clear. They were just growing pains….growing pains to get me to this place, right here, right now.
There is no better time or need for me to be clear and strong. And I am. And now when those days come and I don’t feel this way (and I know they will), I have such a better understanding of how to get through it.

There is a lot to be done for my family and for the DMD community in this time of need and I am ready to help. I have a better understanding of a bigger picture and how it all works together than I ever have and I’m so grateful for that part of it.

Things may get tough going forward. There are imminent changes in Anthony’s care and depending on specific outcomes, possible changes for many. If we only look at today and losing the hope of a cure, then things will seem unbearable. But if we see the whole picture unfolding in front of us, we may get ideas of how to help and pursue all possibilities. To stay clear and not get swept away by fear is so important right now for that fear is based on things that haven’t happened yet. If we can stay here in the moment, we can stay in the solution and be open for answers.

I could never have done that before and today I can say that I am so thankful for my state of mind. I understand that I am here to help my family, the cause and anyone else I can. I believe we will come together as a community and I really do believe that we can make a difference if we all work together. No one is in this alone…..that I am certain of.


We'll See...
There is a Taoist story of an old farmer who had worked his crops for many years. One day his horse ran away. Upon hearing the news, his neighbors came to visit.
"Such bad luck," they said sympathetically.
"We'll see," the farmer replied.
The next morning the horse returned, bringing with it three other wild horses.
"How wonderful," the neighbors exclaimed.
"We'll see," replied the old man.
The following day, his son tried to ride one of the untamed horses, was thrown, and broke his leg. The neighbors again came to offer their sympathy on his misfortune.
"We'll see," answered the farmer.
The day after, military officials came to the village to draft young men into the army. Seeing that the son's leg was broken, they passed him by. The neighbors congratulated the farmer on how well things had turned out.
"We'll see" said the farmer.